Showing posts with label Hypoplastic Left Heart Syndrome. Show all posts
Showing posts with label Hypoplastic Left Heart Syndrome. Show all posts

Tuesday, February 21, 2012

President's Day Weekend

For all of the happiness a 3 day weekend brings, President's Day weekend is always a bittersweet time for me.  Seven years ago, I sat in Rush Medical Center listening to a Pediatric Cardiologist explain the heart defect in my son.   One thing that I truly do love is data...  percentages and statistics usually impress me, but not that weekend.  We started the weekend with just the initial "it could be" diagnosis... with a "but try not to worry about it"  thrown in at the end.  How sad is it to leave a doctor's office with a note that had couple really long words on it and not to know if you should even be crying or not?  But I could tell I should from the look on the nurses' faces. 
So we went to Minnesota on our planned trip for my niece and goddaughter's baptism.    My sister-in-law, who conveniently works in a hospital nursery found out some data from her hospital...  60% chance of survival... ok...  60% was better than nothing...  Monday came...  their success rate was 90%   in dealing with Hypoplastic Left Heart Syndrome. Better.  We made it through, and most days I forget about that awful weekend. But the worry and anxiousness always comes back- usually on these milestone type of occasions.  So while many celebrate President's Day with lessons of good old George and Abe, I celebrate something entirely different...  a 100% success rate in beating Hypoplastic Left Heart Syndrome, a 100% success rate in 3 open heart surgeries, and 100% success rate in getting a great kid!  So Happy Birthday, dear Presidents and Thank you God for keeping us in your care!

Julie 
My baby at 3 weeks old...
Beautiful and healthy today!!!
Can't help but celebrate!